THE family of a four-year-old who has had more than 40 operations is appealing for help in raising money for special equipment.
Ruth and Paul Rankin have set up a fund-raising page for a sleeping system, standing frame and sensory room for their daughter Lydia, who has alobar holoprosencephaly (HPE), hydrocephalus (fluid in the brain) and diabetes insipidus - all conditions which have left her severely disabled.
Lydia is a truly amazing little girl she has had over 40 operations and yet she still smilesRuth Rankin
Ruth, 40, a former dinner lady, said; “Lydia has a rare brain disorder and cannot walk or talk and has low mobility. As she is getting older, we are finding she needs more and more equipment.
“We are looking to get her a sleeping system which costs £1,000 she will benefit so much from this as she will be positioned better of a night time.”
Despite doctors saying Lydia was not expected to survive birth and if she did, her life expectancy would be very short, she has defied all odds and is battling on.
Since her birth in May 2011, where she had an adult-sized head, she has had more than 40 operations on her head to release fluid from her brain.
But still Lydia remains a spirited girl and has been given great support from Derian House and Newlifeline Foundation for Disabled Children.
Ruth, a mother-of-four, added: “Lydia is a truly amazing little girl she has had over 40 operations and yet she still smiles.
“We describe Lydia to everyone as she absolutely loves life.
“We would love to be able to make a sensory area in our house for her too as this will help to stimulate her and she loves lights.”
Ruth and Paul, 42, are now fund-raising for a standing frame for Lydia so she can be released from her wheelchair, a specialist system to straighten her head while she sleeps and a sensory room for her, with fibre optic lights, which is expected to cost £3,500.
To donate towards equipment for Lydia, go to https://www.gofundme.com/9wcr6gc4