Less than one in 20 GM patients with suspected autism get prompt appointment

The National Autistic Society said autistic people and their families often face "long, traumatic waits for a diagnosis", and urged the Government to invest in diagnosis services.

A target time of 13 weeks for those with suspected autism to be assessed was set by the National Institute of Health and Care Excellence.

But NHS England figures suggest only 720 of the 11,090 NHS Greater Manchester Integrated Care Board patients with a referral for suspected autism that had been open longer than the recommended 13 weeks had an assessment within that time as of December. That’s less than one in 20 patients’ being seen within the time frame.

Around a further 805 referrals led to a consultation after the 13 weeks had passed, but approximately 9,605 referrals did not result in an appointment at all.

A patient can have more than one open referral at the same time.

Across England, less than five per cent of the nearly 191,700 patients with a referral for suspected autism that had been open for at least 13 weeks had had a first care contact within the recommended timeframe as of the end of 2024.

The median waiting time for a first appointment was 357 days.

Meanwhile, the number of patients with an open referral for suspected autism continued to increase, with 7,603 new referrals and 6,770 closed ones recorded across the country in December.

There were 212,964 patients with an open referral for suspected autism in England at the end of 2024, meaning 90 per cent of referrals had been open at least 13 weeks.

The Government introduced the National Autism Strategy in 2021, aimed at improving the understanding of autism within society, supporting autistic people at school and in employment, and reducing the wait for an autism diagnosis.

However, Mel Merritt, head of policy and campaigns at the National Autistic Society, highlighted the number of patients with an open referral has more than tripled since December 2021, and warned autistic people often cannot access support without a diagnosis.

She said: "An autism diagnosis can be life changing and in some cases lifesaving.

"Autistic people and their families face a constant fight for support, which often starts with long, traumatic waits for a diagnosis.

"The Government must provide urgent funding for diagnosis services to end this worsening crisis, and make sure autistic people and their families get the support they need when they need it."

An NHS spokesperson said: "While the NHS is managing a 165 per cent increase in autism referrals over the past four years, there has been an improvement in the number of assessments completed.

"But there is clearly a lot more to do, which is why the NHS has published national guidance to help local partners deliver high-quality autism assessment services and provided enhanced autism training for psychiatrists."